📊 134 syndrome influencers tracked

Top Syndrome Instagram Influencers

The 50 biggest syndrome creators on Instagram, ranked by followers — with engagement rates and links to every profile. Updated for 2026.

1
Mmakingmilliestones
Nikki Geib (@makingmilliestones) 🇺🇸
1.2M
7.0% eng.
2
Cclaytons_world_
Clayton Hobbs 🇦🇺
1M
5.2% eng.
3
Oourhuddybuddy
Melanie Droubay | Huddy’s mom 🇺🇸
842.7k
11.1% eng.
4
11beautiishername1
BeautDee & The Bunch 🇺🇸
712.7k
4.2% eng.
5
Cchefadamlibby
Chef Adam Libby 🇺🇸
587k
5.0% eng.
6
Tthe_brotherboys
Brother Boys 🇦🇺
574.1k
5.4% eng.
7
Uuncletics
Leighton Clarke 🇳🇿
473.9k
3.3% eng.
8
M
Ivy Faria 🇧🇷
430.6k
5.3% eng.
9
Ssegunmajo
MAJO PAIZ ARIAS 🇵🇦
428.7k
7.3% eng.
10
Kkylelandiofficial
Kyle Landi 🇨🇦
428.4k
5.8% eng.
11
Tthekimberlydowdell
Kimberly DowDell 🇺🇸
407.9k
4.4% eng.
12
Ttwoandadownmen
Kalle, Erik & Mads 🇩🇪
382.1k
3.2% eng.
13
Sshowtimewerner
Chelsea Werner 🇺🇸
368.9k
4.5% eng.
14
Ggrace_strobel
Grace Strobel 🇺🇸
350.2k
3.6% eng.
15
Eerinadvocates
ERIN JOHNSON | storytelling | siblings | down syndrome 🇺🇸
346.8k
3.3% eng.
16
Mmadelinesmodelling_
Madeline Stuart 🇦🇺
328.9k
6.7% eng.
17
Llilydmooreofficial
Lily D Moore 🇺🇸
307.6k
5.0% eng.
18
Ddrbenlynch
Dr. Ben Lynch 🇺🇸
281.7k
3.0% eng.
19
Aa_little_extra_jayne
Summer Adamson 🇺🇸
276k
7.4% eng.
20
Aabigail_the_advocate
Abigail the Advocate Adams 🇺🇸
269.8k
3.8% eng.
21
Ccandidlykind
Candidly Kind 🇺🇸
263.4k
8.3% eng.
22
R
Rebekah Lyons 🇺🇸
241.3k
2.5% eng.
23
Ddown.rightdelicious
Andrew Garland 🇺🇸
238.3k
5.9% eng.
24
Ddragsyndrome
Drag Syndrome 🇺🇰
210.8k
1.6% eng.
25
Ssallysmack
Sally Phillips 🇺🇰
197k
5.1% eng.
26
Tthatdadblog
Alan Lawrence 🇺🇸
175.1k
0.4% eng.
27
Ddr.melissakoehl.pt
Melissa Koehl 🇺🇸
165.7k
2.6% eng.
28
K
Kennith Allen Thomas 🇺🇸
165.5k
6.6% eng.
29
Ttree.21
Patrizia | Mama + Schwanger 🇩🇪
162.4k
2.5% eng.
30
221pineapplesshirtco
Nate Simon | 21 Pineapples 🇺🇸
153.4k
4.6% eng.
31
M
Jennifer Hogan Jones 🇺🇸
149k
10.2% eng.
32
Mmarianadeugarte
2x21 - Mariana de Ugarte 🇪🇸
143.6k
4.2% eng.
33
Wwillsjourney21
Catherine Daub (Iron Will’s mom) 🇺🇸
141.9k
5.8% eng.
34
Mmayane_sarah_
MAYANE 🇫🇷
137.9k
4.4% eng.
35
T
The Lucky Few®️ 🇺🇸
128.3k
3.6% eng.
36
Ddownrightwonderful
DownrightWonderful 🇺🇸
127.7k
6.9% eng.
37
Mmistycoysnyder
Misty Coy Snyder 🇺🇸
99.4k
6.5% eng.
38
Jjmccormick526
Jennifer McCormick 🇺🇸
90.6k
3.1% eng.
39
Z
Zara Beth 🌙 🇺🇰
86.1k
3.8% eng.
40
Mmariesweekends
mariesweekends 🇩🇪
84.6k
3.2% eng.
41
Oopen_future_learning
Open Future Learning 🇺🇰
82.6k
5.1% eng.
42
M
Mary Borman 🇺🇸
78.8k
5.3% eng.
43
T
Tourette’s Cop 🇺🇸
76.7k
9.7% eng.
44
Sseabass43701
Shannon Longstreth 🇺🇸
76.5k
2.1% eng.
45
A
Amanda Schwiening 🇺🇸
75.9k
5.1% eng.
46
Ppeople_of_down_syndrome
Jessica 🇺🇸
69.1k
3.8% eng.
47
O
Jessica Egan 🇺🇸
68.3k
5.4% eng.
48
A
Helpiyani Suryaningrum Otaya 🇮🇩
68.2k
0.9% eng.
49
Nndssorg
National Down Syndrome Society 🇺🇸
63.5k
3.2% eng.
50
G
Global Down Syndrome Foundation 🇺🇸
63.3k
2.1% eng.

Find more syndrome influencers

This is the top of the list. Our database has 134 syndrome influencers — including micro and nano creators the big names hide. Search by follower tier, country and niche, and export the shortlist.

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FAQ

Who are the top syndrome Instagram influencers?

The 50 biggest syndrome creators on Instagram right now, led by @makingmilliestones and ranked by follower count. We track 134 syndrome influencers in total; this page lists the largest.

How is the syndrome influencer list ranked?

By Instagram follower count, largest first, from our creator database. Each row also shows the account's engagement rate so you can spot smaller creators who punch above their size.

How do I find more syndrome influencers, including micro and nano creators?

Use the free Instagram Influencer Search to filter the whole database by follower tier (including the 1k–10k nano tier), country and niche — not just the top syndrome accounts shown here.

Can I export this influencer list?

Yes. Open the Instagram Influencer Search, run the same niche, and export the results to Excel, CSV or JSON. For bulk access, use the API.